Saturday, September 30, 2006

Remember This Guy? (I'll Be Back)


Woke up today feeling much, much better. The neutropenia probably hit its nadir yesterday, and it was a pretty grueling day. While the nastier side effects of this last cycle were milder than the first, this treatment is more immunosuppressive, and yesterday it felt like I had cement coarsing through my veins. Getting off the couch had to be done in stages: the sit up, the feet to the floor, the stagger to wherever (repeat, return to couch). It wasn't much fun.

After I got out of the shower last night I opened the drawer where I keep my brush, hoping to comb my hair. Then I looked in the mirror only to see a lollipop-less Kojak staring back at me.

Oops.

I know I'll get my hair back along with my health, but I do miss my mane. I've noticed that I must have had a habit to run my hand through my hair, because I periodically do that now, and all that happens is I irritate my scalp.

Maybe for now I'll wear this Donald Trump weave to protect my dome...

Thursday, September 28, 2006

Thanks, Mom


With our first child on the way, my heart breaks for any parent who has to see their child sick. While with the exception of chemo- and antibiotic-induced nauseau and vomiting, lymphoma has never actually made me feel ill, which made the time from diagnosis until treatment a lot easier for everyone involved. But for now, not quite myself in the chemo's wake, I know that it is especially hard for my parents to see me bald, a little skinny, and a little slow on the draw.

For my parents, having immigrated to the sunnier confines of South Florida during the Great Pastrami Migration of 1991, and for Jacqui's parents, who, before Jacqui and I met, moved to Florida during the 2001 Shuffleboard Rebellion, not being close by is rough.

But for my mom especially, the idea of seeing her son go through hell to get better, having already shephered my dad through the same (he is also a cancer survivor), must really suck. My mom's confidence in my treatment outcome, her support to Jacqui, Otis, I during this time, and her seemingly effortless ability to clean an entire home in what seems like minutes (in her sleep), has been invaluable to us. It even offsets the time in the hospital a few weeks back when she aggravated me to no end by insisting that my IV was dripping too fast.

So thanks, Mom. And hang in there.

I may lose a few more pounds before this is over, but not only will I be de-lymphomatized in a few months, you'll also have a grandchild.

Wednesday, September 27, 2006

Freedom and Abandon

It is a gorgeous day in Philadelphia, and all I want to do is go for a long run along the Skuykill. With my blood count diving by the hour, I don't think I'd get very far. Otis and I just went for a few laps around the block, and that was about all I could handle. But by early next week I'll be back in the gym, falling asleep on the stationary bike.

Last night Jacqui and I attended the inaugural meeting of the Lymphoma Research Foundation's brand-spanking-new Delaware Valley/Philadelphia Chapter. It felt liberating getting out of the house, and even better doing it for a great cause.

As I've mentioned a few times in the blog, I have taken on the leadership of the new chapter, and am very much looking forward to raising money for lymphoma research, providing a haven of support for lymphoma patients and their families, and educating the public about the disease.

Around fifteen people attended the meeting, which for everyone in the room was filled with emotion. Not all of us there were now or have been lymphoma patients, but around that table we were all lymphoma survivors, having survived the physical and psychological rigors of the disease, or shared in those rigors with a loved one, a friend, a colleague. No matter how much all of us wished, in some unreal way, that we could be there simply as casual observers, or even wished we were home with the freedom and abandon to have our minds on other matters, I believe that together we shall do extraordinary things in the coming months, years, and decades. To do any less would be failure.

So I put all of you on alert: come to a meeting in Philly to show your support or attend an LRF meeting in your city (and if there is none, consider starting a chapter), plan on volunteering at an event in the coming years, or donate to this important cause. In a few days I will have a direct link from baldmike.com to the LRF website. But for now, you can find out how to do all of these things at:

http://www.lymphoma.org/site/pp.asp?c=bfIKIVMIG&b=36832

Tuesday, September 26, 2006

Proof of Paternity

With just a week left in baseball season, my adopted home city of Philadelphia is agog at the propsect that the Phillies may, for the first time since 1993, make a post-season appearance. With slugger Ryan Howard leading the way, the Phils just may squeak into the playoffs. But given this teams ability to choke, I don't think there's a Philadelphian anywhere willing to bet their house on a post-season spot.

Despite the fact that Philadelphia is now my home and the Phillies are officially my adopted National League team, as an ex-pat New Yorker, the Yankees run in my blood. I will admit a strong distaste of all things Steinbrenner (his reinstatement to baseball after a lifetime ban sent Judge Kenesaw Mountain Landis spinning in his grave), and I think Steinbrenner has, followed by a bunch of spineless owners, commissioners, and even player reps, weakened the game, squandered the faith in baseball of many a young American boy and girl, and may also be responsible for the ozone hole. But history--having shared almost four decades of rooting for great players like Munson, Mattingly, and Williams with my dad--keeps me coming back for more.

So what more proof do you need than that of a bloodline to show you how deeply ingrained the Yankees are. I may become a Phillies fan, but the red and white will always mingle with Yankee's pinstripes. Below is a photo of our baby-to-be's ultrasound. Yea, the nose gives it away. But the hat helps too.

A Mouse Tale

Feeling pretty good today. Had a good night's sleep. Eating normally (save the boring precautionary neutropenic diet), watching lots of Star Trek re-runs, and preparing for tonight's inaugural meeting of the Delaware Valley Chapter of the Lymphoma Research Foundation.

Last night I knew that I was well on the road to recovery when I heard Jacqui screaming loudly from downstairs. Was there an intruder? Was she having some weird pregnancy pang? Was Freddy Kruger in our backyard?

I summoned the strength I had gotten from my tasteless piece of grilled chicken and baked potato and ran downstairs (taking a brief nap six steps down), and saw Jacqui is yelling at Otis to "drop it." By "drop it," she meant the teeny tiny baby mouse Otis had in his jowls, scooping it up, sucking on it like a mouse-flavored lollipop, spitting it out, and starting the process over again. Yummy. Tastier than three days of hospital food.

We finally got Otis to drop the poor little fella, who, I discovered upon closer inspection, had at least hours, if not days before, made his way to mouse heaven. We can't figure out if the mouse was a bonus prize from the hospital (Otis apparently found it in my hospital bag), or if he had made his way into the bag after we had gotten home. Either way, chemo-exhaustion and all, it fell to me to discard it. I thought about putting it under Jacqui's pillow for a good laugh, but I worried that she might react by slipping me a vomit-inducing Cipro. I threw the mouse away.

Finally, you'll notice that you can now access the blog directly at http://www.baldmike.com/

In the coming weeks we'll be adding some features to the website, including links to information about lymphoma, pictures of our baby-to-be, and great online mortgage offers.

Bald Mike's Blog has moved...

The blog is now located on my home page at http://www.baldmike.com. Please update your bookmarks. Thanks.

Monday, September 25, 2006

Guest Blogger: Andrea (Michael's sister)

Just a quick note to let you know that Michael was discharged late Saturday night. He has been feeling pretty tired and nauseous and not much up for blogging. The good news is that there have been no ticks up in the puke-meter. Let's hope it stays that way.

I know how much Jacq and Michael have appreciated all of your love and support. I'm always in awe of how many devoted friends they have. I remember being so moved by the multiple speeches at their rehearsal dinner and by the love they share with their friends. It's pretty wonderful.

The gold medal in friendship this month goes to Mr. Bill Shein. Bill and Michael met at Tufts and have been friends for almost 20 years. He has been here in Philly for both treatments and has helped with everything from laundry, to walking Otis, to picking up dinner, to shuttling Jacq back and forth to the hospital, to making Michael and Jacqui laugh. Overall, his warmth and support mean so much to both of them.

Thanks Mikey for giving me the honor of 'Guest blogger'. Come and visit and maybe you too can become a guest blogger!

Much love,
Andrea

Saturday, September 23, 2006

Guest Blogger: Jacqui

I'd like to take a moment to acknowledge the hard work and dedication of Michael's one super kidney. For those who haven't heard the story, when Michael was first diagnosed last year he had to go through a series of tests including a CAT scan. The tech who was doing the testing turned to Michael part way through and said something like "...so when did you have your kidney removed?" Yup, turns out that my husband was born with a single, albeit enormous, kidney and he never knew. Well, his blood work came back from this morning and it appears that his amazing kidney has already metabolized the methotrexate in his body beyond where we need it to be to get out of here. This means that we can go home tonight after Michael's last round of chemo (midnightish)!!

Michael is feeling pretty tired. In general I would say that this hospital stay was slightly less pleasant than the last two. We had some screamers on the hall last night and a nurse who didn't exactly exude confidence. But it doesn't matter much now because in about 5 hours we'll be sleeping soundly in our own bed with super Otis and the super kidney.

Keep the emails and phone calls coming. They have been a tremendous pick-me-up when marathons of Northern Exposure start to tire. And of course a happy and healthy new year to all those celebrating. May it be a year of friendship, love, birth and de-lymphomatization.

Friday, September 22, 2006

Sleepy

Feeling tired today. Got the first dose of my second chemo drug this morning and I am feeling it. Not sick, just very sleepy.

Saw my doc this morning who told me that based on last week's blood counts that things are going in the right direction, so we are very happy with that. I celebrated with a three hour nap. He also told me that I can expect to feel pretty crappy next week, given that this round of chemo is more immunosuppresant than the last round. Lucky me.

So with this bit of good news (the fact that the chemo is doing its job) I wish all members of the tribe out there following my progress a very happy Jewish new year. It was quite a 5766. Very much looking forward to being lymphoma-free in 5767.

I leave you tonight with another possible chemo look...


Thursday, September 21, 2006

Otis in Solidarity

Having a good day. Treatment so far has been tolerable. Had a mild reaction to the rituximab at 2am last night. Just minor chills and a little nausea. Switched into a private room this afternoon thanks to the amazing staff on Rhoads 6. Thus Jacqui gets to spend the night, and all are happy, except Otis, who remains confused at the situation.

I miss him terribly.

When I was first diagnosed and a certain Dr. Death armed with the wrong information suggested that I would be heading toward the daisies, all I could think about was that my dog, the second love of my life, would outlive me. Until we had tests results, and the best doctors told me to chill out and that I wasn't going the way of Campbell Scott in Dying Young, I used to cuddle with Otis in terror. I was horrified that my adorable dog would become the man of the house, always left wondering what had happened to me, and left alone to take care of my beloved Jacqueline. Thankfully, that is not going to be the case, and Otis, while confused at my absense, has taken to wearing a bandana around the house, and has even asked to shave his head. My dog, the genius.




Wednesday, September 20, 2006

It's Showtime...Again

Here we go again.

The call came in at about 4:30 from Admissions at HUP. Bed ready. Report for chemo right away. Yes, sir!

We got to the hospital to find out that I was assigned to a shared room, which means that Jacqui cannot stay the night with me. The amazing nurses here on Rhoads 6 promised to switch me into a private room at noon tomorrow. A pregnant belly goes a long way in these parts. I'll have instant messenger opened all night, plus my phone on, so Jacqui can contact me at any time.

As happy as I am to be back on the road to de-lymphomatization, I am not happy being back in the hospital, especially since that means a night away from Jacqui, and a few nights away from Otis. Plus we have water in our basement, and a parade of plumbers later, we have determined that the leak is external, and tomorrow the foundation guy comes. Don't we have enough on our plate?! At least the exorcism peformed last week seems to be working.

This treatment is a little different from the last one. Tonight they'll start me on Rituximab, and by early morning I'll get my chemo chaser--a 24 hour drip of a nasty drug called methotrexate, for which they give me a secondary drug to help me secrete it. I can't leave the hospital until the meth... is almost completely secreted. After the meth... is done, I get a different chemo, the name of which I am forgetting, for 2 days. Then I should be free to go home, maybe late Saturday night, but in all likelihood, Sunday morning.

I've been getting nice comments on the new bald Mike look, but I'd, of course, rather have a full head of hair. The strangest part of being bald is that my head gets cold, so as it gets cooler out I'll definitely be switching back to the bandana and other head gear. I've got a bunch of new hats and such to take me through the winter. Here's one...

Tuesday, September 19, 2006

Bald Mike (or Jeez, My Head is Cold)

Hair is now gone. Over the weekend, with just a few wisps of hair left, I started to look like a cross between Homer Simpson and Darth Vader under the helmet. Not a good look.

So last night, not wanting to spend the next six months underneath a hat or a bandana, I took out the clippers and shaved the giant Yudell head. The photo that follows may be shocking at first, but I do a mean Kojak imitation... "Who loves ya, baby?"

Once completely shaved, I discovered that Jews really do have horns. I have two moles on opposite sides of the back of my head that are located where it looks like my horns once were, cut down to little stubs. Mom, is there something you've been wanting to tell me all these years?

So what do you think? Who do I look like bald?



a) Telly Savalas;

b) Yul Brenner;

c) Sinead O'Connor;

d) Andre Agassi; or

e) Mr. Clean


Post your responses.

I go back in for the next round of chemo either tonight or tomorrow. Feeling great (save being a little tired in the mornings), and looking forward to getting a little closer to having this behind me.

Thursday, September 14, 2006

Bad Hair Day

I am not a particularly vain person. I am a casual dresser (although I've been known to buy a nice suit here and there), I think botox and plastic surgery are signs of the apocalypse, and I know that my nose sits somewhere on the schnoz-scale between Cyrano De Bergerac and Jimmy Durante. Having lost a few pounds from puking last week, my proboscis is looking especially large these last few days.

But I have to admit that the thing I have found most repugnant about chemotherapy, even worse than the vomiting and neutropenic fevers, is the fact that I am going to be as bald as a baby's bottom by this time next week. I know, I know, it all grows back. Thicker they say. And maybe even of a different texture. But at 38 I still have a great head of hair, and watching the remnants of my mane take the long, circular march down the drain each morning, and knowing that I am just days away from looking like Kojak on a bad day, stinks. I know it's all for the ever-important cause of de-lymphomatization, but still. Couldn't the makers of chemotherapy have come up with a different side effect? Like instant six-pack abs, X-ray vision, or the ability to travel back in time to set right what once went wrong (insert George Bush joke here).

On Monday night at dinner my scalp started feeling tingly, and by the time I got home, my temporary membership in the "Hair Club For Men" was already active. Just a simple tug at the follicles, and out would come a small clump. After a visit to Jacqui's OB/GYN the next morning, where we listened to our baby's beautiful heartbeat, we headed off to the barber. When our baby is born in just 2 1/2 months, he or she will have more hair than me.

Teri, my barber, gave me my chemo-cut on the house. Just another example of the wonderful acts of generosity and kindness that, despite the discomfort of chemo, have made the last few weeks extraordinary. I can't wait to pay for a haircut again in 6 months or so. That will be a good day.



This photo was taken of Jacq and I just before the big cut. Notice the extra-thick hair.


Uh, oh. Do I really want to do this, or do I want to wake up tomorrow with all my hair on my pillow?


Ah, the unibeard. A good look if it was 1994!


Thanks, Teri! See you in 6 or 7 months with a big 'ole mop of hair.

Tuesday, September 12, 2006

Mmmmm... New York Bagels

Having lymphoma has some benefits, I've found out.

Some of them are fairly obvious; gifts from friends, old and new, which has resulted in a stack of DVDs several feet high and the rapid expansion of my personal library.

Then there have been the acts of kindness and generosity. Friends bringing over meals, visits in the hospital, my cousin Emily starting a fundraiser (see earlier blog), offers by almost every last Philadelphian to walk Otis, my barber giving me my chemo cut on the house (tune in tomorrow for that story), and my colleagues at the Drexel Univ. School of Public Health offering to do whatever they can to ease any work-related challenges.

I have to admit though, that one of the most touching gifts came on Tuesday from a new friend, Carolyn Razanno, who is the Chapter Development Program Associate at the Lymphoma Research Foundation (LRF), the nations largest non-profit organization dedicated to raising awareness and research dollars for lymphoma: (http://www.lymphoma.org/site/pp.asp?c=bfIKIVMIG&b=36832). As some of you know, I am currently President of the LRF's Delaware Valley Chapter, and Carolyn has been among those helping me with the logistics of getting the chapter off the ground.

As we chatted at our Chapter's first organizational meeting a month ago, I complained loudly about the poor quality of bagels, knishes, matzo ball soup, and other Jewish foodstuffs in the Philadelphia area. Carolyn must have been listening, because the day after I got out of the hospital, two dozen delicous New York bagels arrived at my door like manna from Heaven delivered by the UPS man. Jacqui, her dad, and I have been feasting on bagels and cream cheese ever since. Thanks, Carolyn. You made my day. Now if one of you can get Zabars to open in Center City Philadelphia...

A final note, I am feeling great. Went to the gym tonight, have been sleeping well (save the strange sensation when I wake-up that I need to wheel my IV with me into the bathroom), and am looking forward to a relaxing chemo- and neutropenic-free weekend.

Monday, September 11, 2006

Going Home

White blood cells well on the road back to normal. I am no longer welcomed at Penn (for the moment, at least). Time to take care of my pregnant wife (who, at almost seven months pregnant, slept by my side on an air mattress every night in the hospital), go to the beach for a walk with Otis, and eat lots of sushi. Next treatment scheduled for late next week. Until then...

Sunday, September 10, 2006

My Cousin Emily


It's been a good day. No fever. Blood count rising. And Chad Pennington's arm looked good in today's NY Jets' season opening victory. J-E-T-S, JETS, JETS, JETS! Still, I am more likely to wake up lymphoma-free tomorrow morning than the Jets are to win the Superbowl this year. Oh, well. More important things to focus on at the moment.

With me in the above photo is my cousin Emily. She, her siblings Steve, Greg, and Meaghan, and their parents Rob and Margot, are my home away from home in Los Angeles and I miss them always. Since college I've tried to visit them as often as I can, and with six months of treatment ahead, I probably won't get to see them all until later on next year.

Emily, who started the seventh-grade this past week, is so special to me. Whether it’s been our trips to Zuma beach in LA, talking on the phone, or flying her to Florida to spend a week with my family, Emily and I are always laughing and joking. I know that its been hard for her to learn of my lymphoma diagnosis, and I wish I could just fly to Los Angeles to give her a big, reassuring hug.

Emily has not run away from my diagnosis, or seemed paralyzed with fear of my treatment. Instead, last week, Emily and her friend Charlotte started a fundraiser in her neighborhood for lymphoma research. First, she called me and asked where to donate the money raised (I told her the Lymphoma Research Foundation, which has a fund dedicated specifically to support research on my subtype of lymphoma: http://www.lymphoma.org/). She and her friend designed a flyer that they put in mailboxes, on stop signs, bulletin boards, etc. around her neighborhood. In just one week Emily and Charlotte have raised almost $300 for lymphoma research.

Emily's initiative, and her dedication to doing what she can to make me better has touched me at such a fundamental level that I almost do not know what to say to her other than thank you and I love you. Emily, you are wise and caring beyond your years, and I am lucky to have you in my life.

Saturday, September 09, 2006

The Unshaven Face of Neutropenia


With my white blood count now hovering at .3 (a jump from yesterday's low of .2), and the high fevers gone, I am on the mend and feeling much, much better today. Jacqui and I both had good sleep last night, and had a nice nap together in my hospital bed this afternoon. Jacq and my mom are at home now making me dinner, given that the hospital's version of dinner looked like something I barfed up earlier in the week. No thanks, I'll pass.

Last night and today Jacqui's old pal Ivy was in for a visit solely for the purpose of bringing me delicious homemade chocolate chip cookies, which, I've been told, are a scientifically proven way to reverse neutropenia and enhance the beneficial effects of chemotherapy. Thanks, Ivy! For those of you out there wondering, brownies (without nuts) are also known to do the same.

Here's a nice shot from earlier today of (left to right) Ivy, my mom, and Jacq. Check out Jacq's belly. Little junior is growing by leaps and bounds. Also notice, that despite the fact that her son is stuck in the hospital with chemo-induced neutropenia, my mom is actually smiling. Go mom! It's gotta suck watching your son be poisoned to save his life. One day we'll look back on this together and vomit.


Friday, September 08, 2006

Zombie Breakfast

Fever broke at 7am. Feeling much better. Blood count dropped even further, but will start bouncing back over the weekend.

My doctor, who we adore, joined us for breakfast in my room this morning. We love chatting with him, but having slept just a few hours, and having sweat off 40% of my body weight, I could barely stay awake. We filled him up with an omlette and some coffee, and sent him off to do rounds. Godspeed Doctor Stephen J. Schuster. Keep up the good work!

My Dad, The Comedian


It's almost 6am and I am riding out a neutropenic fever that got up to 103. Totally normal for why I am here, and I am now sweating it off like Richard Simmon's "Sweating to the Oldies," save the dancing Richard in tiny shorts and tank-top with the bad 80's moves.

Many of you have sent emails and left postings commending me for my great attitude and sense of humor through this all. I told you in an earlier posting that for me this is the only option, "that the best way for me to slay this beast is with determination, optimism, and laughter." Lying awake, sweating off a fever, I suppose is as good a time as any to reflect on where my attitude comes from.

Almost eight years ago my father was diagnosed with kidney cancer. He has survived this often deadly disease, and despite a few speed bumps along the way, continues to be successful in his career, win a club golf tournament or two, and remain the number one Sunday buffet-eater in South Florida.

That my father and I now share a cancer diagnosis is probably no accident. We share genes, a nearly identical environment from my birth to when I left for college, and a penchant for sprinkling asbestos on our ice cream sundaes. Research has even suggested some type of link between lymphoma and kidney cancer.

But the more interesting link for me is the relationship between adversity and humor that I have taken from my father's own challenges. Just after he was diagnosed, I tried to publish the below piece on NPR's "All Things Considered." They were planning on bringing me in to record, and then someone was worried that their listeners, including cancer patients and their families, wouldn't find cancer funny. They missed the point of the piece. Cancer is not funny. Life is.

So thanks dad, for amazing survival skills. Read on folks:

MY DAD, THE COMEDIAN

By Michael Yudell

My dad, to no avail, has always wanted to be a comedian. Once, in a moment of humorless desperation, he answered a newspaper ad for comedy lessons. I discouraged him from following up on it, convinced that any comedian with the time to give private lessons was a hack, and probably had a repertoire filled with dated 1950s borscht belt humor, or, even worse, knock-knock jokes.

I imagined my father at a family gathering, his material fresh from that afternoon’s comedy lesson:

My father: Knock-Knock
Me: Come on, dad, I’m not five.
My father: (with the conviction of a professional) Knock! Knock!
Me: Dad?!?
My mother: Michael, just humor your father!
Me: Give me break! This is the seventh knock-knock joke of the night.
My father: (Dejected) Knock, knock.

Over the years my father has had his comedic moments--even without the assistance of a comedy professional. It usually happens on car trips, when we’re all together, too many of us crammed into the back seat of my parent's car. He’ll have our rapt attention for a few minutes of good standup, soothing the soul of our dysfunctional clan. But instead of saying “thanks, you’ve been a great audience, goodnight!” he inevitably starts laughing the loudest at his own jokes, a sure sign of comedic hara-kiri, and quickly our guffaws and cackles turn into pleas for him to stop, or even the occasional threat by one of us to jump out of the speeding car.

There was nothing funny about my dad’s diagnosis with kidney cancer a few months ago. He required immediate surgery. It was, the doctors said, his only option. Kidney cancer is an often untreatable malignancy, and if the disease has spread, it is often deadly. That made the two weeks following the tumor’s discovery until surgery and prognosis an incredibly painful time. I was terrified. I had never really considered my dad’s mortality, and had never thought that I could be denied the chance to share with my father the watersheds of adulthood, the joys and growing pains of life.

The day of the surgery came quickly, and all of us were extremely tense as we accompanied my father to pre-op, asking the doctors the same questions over and over again in a repetitive stupor. My father, meanwhile, spent his time nervously asking the young looking doctor how old he was, as if convinced that he was sixteen and held the Doogie Howser Chair in Anesthesiology. I thought I was going to vomit as I watched the nurse and doctor wheel my father away. I remember it all now in slow motion, like a bad movie. My dad slowly extending his hand toward us in a dramatic “everything is going to be OK” gesture. Then watching him look up at the young doctor, saying with as much energy as his drug induced body could muster: “Take me to your leader!”

I’m still not sure whether it was the fear or the morphine, but in the hospital my dad was hilarious, snapping off one liners that might land him a gig at The Improv, or maybe even qualify him for a membership at the Friar’s Club. Was cancer then the secret to his comedy? Would comedians hear of this cancer-comedy symbiosis and rush to my father’s bedside to nourish their comedy reservoirs? I imagined the comedy great Milton Berle, who, after all, discovered the relationship between comedy and cross-dressing, honoring my father and his discovery.

At a Friar’s Club Roast Berle, chewing on his cigar, would say: “We’d like to welcome into the Friar’s Club fold comedy genius Allen Yudell, who will always be recognized for discovering the relationship between humor and a good tumor.” (ba-dum-dum) My father would rise, cheered on by his new comedy colleagues, and walk to the dais victoriously holding his blighted kidney high above his head, stopping to shake a few hands, and show those who could stomach the sight, the tumor that had destroyed his now former kidney. Once on stage my father would thank the audience and remind them just how funny life could be. He’d then go into his routine, briefly heating up the audience. But like our car trips before, the jokes would quickly deteriorate and the Friar’s “hook” would have to be deployed.

In the wake of this near tragedy I’ve realized that the root of my father’s comedy prowess lay not so much in fear or in a drug induced stupor, but in his ability to disarm a tense situation. In a packed car he always worked hard to neutralize some battle that was flaring up among his children in the back seat, or between any of us and my mother. In the hospital, he saw the look of terror in our eyes, worried that we might lose him to a virulent disease, and the jokes sprang forth.

I know that the jokes to come will be excruciating, mind numbing at times. But I’d sooner sit through a barrage of bad knock-knock jokes than a right radical nephrectomy any time.

Hey dad, know any good Buddy Hacket jokes?

Thursday, September 07, 2006

Neutropenia Here I Come

Sure glad we didn't go to the Cape. I don't want to knock Cape Cod medicine, but it would have been a rough week if we were up there. Lobsters and low white blood cell counts don't go well together.

After gaining strength for the last few days and getting briefly out of the house a few times, the predicted white blood count drop (called neutropenia) came late last night/early this morning, and I have made a triumphant return to the Hospital at Penn. We got here early this morning, and they kept me in the ER for 10 hours until a bed opened up. 10 hours of listening to the lunatic in the ER room next to me scream for help, bang her arms on her bed, and yell at the doctors and nurses. I was also examined by 17 doctors, 25 nurses, 15 medical students, and the UPenn Quaker Mascot. Ah, life in a teaching hospital.

We finally got up to a room at 4pm, and now we wait for my blood count to come back up. It may take a few more days of uncomfortable IVs, multiple blood draws, and getting weighed at 6am, but this is all part of the important and ongoing process of de-lymphomatization. A good cause with a steep price. I need a vacation.

By the way, today's white blood count winning guess was .8 or 800 white blood cells per cubic millimeter. Congratulations Sabine Eustache, my doctoral student and colleague at the Drexel University School of Public Health. A BBQ for you in the next few weeks.

Wednesday, September 06, 2006

Guest Blogger: Otis


Rrrrrr, ruff, ruff, rrrrr, ruff, bark, bark, rrrr, bark, ruff... Today I spent most of the day in bed sleeping with my dad. We also watched 4 episodes of Northern Exposure: Season 3 and ate some yummy chicken. He wasn't sick at all today, just very tired.

It was ruff seeing him vomiting so much this week. And he smelled funny from the chemo. But he is getting bark to normal, and I was so excited when he took me for walks last night and tonight.

Tuesday, September 05, 2006

Temporarily Reduced to Rubble

Can't say I feel much like blogging today, other than a brief note to let everyone know that I am doing better. The doc finally took me off all antibiotics, given that every time I took one I puked. So, for now, the puke-O-meter remains stable at 6 and I've been sleeping off 2 days of vomiting and dehydration.

The antibiotics themselves are standard for chemo patients. The chemo will cause my blood count to temporarily drop in the next few days, making me vulnerable to infection, hence the pile of pills. Should there be an anthrax attack this week in Philly, I should be one of the few left standing (thank you two miserable days of Cipro!). We'll see the doctor again on Thursday when he'll probably put me back on some antibiotics (watch that puke-O-meter rise).

Top prize this week goes to the person who can come closest to guessing Thursday's scheduled white blood count (doctors with access to test results in Penn's computers are not eligible for this contest). Normal range is generally between 4,300 and 10,800 cells per cubic millimeter, or, let's just say between 4.0-10.0. My count will be anywhere between 0 and normal. Good luck! Winner gets BBQ at chez-Yudell-Rick once I am feeling better. Results will be posted late Thursday. Post your entries on the blog.

So stay tuned. Once this week is past, things will get better.

Monday, September 04, 2006

Puke-meter up to 6

Hi everyone, this is Jacqui blogging for a change. Finally I took advantage of Michael's weakened state to learn the secret codes to his famous blog. Ah, what power I hold. I guess I should warn you all that I am not nearly as funny as my husband but you probably already figured that out.

Anyway, wanted to let you know that it is a good thing that Cape Cod remains 8 hours away since we have already made 3 drug store runs and a 2 am trip to the ER. No worries, Michael just needed some IV fluids and we were on our way. In other news I think I am going to cancel my gym membership since the regular trips up and down the stairs in our house are giving me all of the exercise I need. We'll see what happens in my eighth month...

Anyway, I know Michael already said this in previous posts but I want to reiterate that all of your support has been invaluable this week. Thank you especially to those who visited in the hospital and who called daily. Looking forward to a good day tomorrow.

Sunday, September 03, 2006

Have You Heard the One About?


Have you heard the one about the schmuck with the pregnant wife who just finished his first round of chemo and thought he was going to drive eight hours to Cape Cod the next day?

Need I say more.

Got home from the hospital feeling great. Tolerated the chemo remarkably well. Roads were wet last night, so we figured that we'd be better off waiting until morning to start our trip. Jacq was exhausted too. 3 nights on a hospital pull-out does that to you, I hear (the husband in chemo and a kicking fetus don't help matters either).

This morning I woke up feeling it. I've never been so exhausted. It was an overwhelming feeling, nothing like I've felt before. I didn't feel sick (at first, at least). Just such exhaustion that is was uncomfortable to find a comfortable position and sleep felt beyond reach. I didn't even remember falling back asleep, but I woke up, not feeling naseaus at all, but only with a tremendous urge to vomit, which I finally did (for those of you counting, that was my first puke, not bad for a guy in chemo). What a relief! I was finally able to eat, and get some normal sleep (which I've been doing on and off all day), and slowly I am regaining some strength and feeling ok.

So, no Cape Cod for today. We've decided that Cape May (just a 90 minute drive) will have to do this year. Cape Cod is our favorite place in the world to just relax, and if Jacq wasn't 6 1/2 months pregnant, I would have probably forced her to drive me. But with both of us a bit hobbled, driving that far was a stupid idea. Oh, well. Too bad Otis can't drive.

Saturday, September 02, 2006

X Marks the Spot of De-Lymphomatization


All done. Final infusions complete. Untethered from the IV line. Feeling fine.

Cape Cod here we come.

Talk to you all soon.

Much love,
Michael, Jacqui, and Otis



Words of Wisdom - Honor Thy Nurses


As my stay here wraps up in a few hours, I would be remiss not to mention the nursing staff here at HUP. My nurses--Kim, Valerie, Cisely, and Lisa--were all incredible, taking great care of me and Jacqui. And the nursing support staff, environmental staff, etc. were also wonderful. I cannot begin to thank them for keeping a close eye on me this week, and making sure that I was safe, comfortable, and well-hydrated.

Here's a hat tip to the Godmother of nurses, Florence Nightingale. Check out her museum:
http://www.florence-nightingale.co.uk/

Visiting Hours Coming to a Close... Almost Free (for now)!


Thanks to all the friends, family, delivery persons, and debt collectors who stopped by this week to check on me and bring all sorts of hospital contraband. Pictured above are friends Vandana and Rick, two doctors here at Penn, who smuggled in the beer for a late night kegger here at 6014 Rhoads. It was a blast. Nothing goes better together than cytoxan (last night's chemo), Pabst Blue Ribbon, and me dancing around in my hospital gown.

I'll be discharged mid-afternoon on Saturday, so for those of you who were planning on visiting, make sure you come early, or just save it for the next round in a few weeks. I've had a ton of visitors this week, and am so appreciative for all of your love and support via the blog, email, phone calls, and a stop by.

I am doing fine. The chemo so far has had no ill effect, and all I am looking forward to at this point is getting home and giving Otis a big kiss.

Once I am out of here today, there will be minimal blogging from Cape Cod. Time for some private time with Jacq and Otis, some long walks in the dunes of the Cape, and maybe a nice big lobster (as long as my nurse doesn't pop out from under the table and tell me I can't eat it).

Can't Spell Trouble Without Sushi

Last nights dinner arrived from our local Japanese/Sushi joint. My father, who's job this week has been "Team Captain: Food", came rolling in with a giant platter of raw fish. The nurses, apparently horrified that someone on chemo would eat raw rish (potentially dangerous bacteria) told my mother that I could not eat the sushi. After talking with the nurse for a few minutes and checking my now normal blood count (and calming my mother down), it was determined that I could eat the sushi... for now. But then I found out all the stuff that I can't eat when my blood count drops, which will happen 7-10 days from now, lasting for just a few days here and there. No raw veggies, no fruits, unless you can peel them, no soft-serve ice cream or yogurt, no non-frozen bagels, and, worst of all, no leftovers. And the list goes on. Yikes, when my blood count drops, I guess my weight will too. Fun!

Friday, September 01, 2006

Uneventful... Except for the Belly!


Not much to report so far today. Just finished my fourth round of chemo treatment. Two more to go. Should be out of here late Saturday. If I am not too tired, we'll start our drive to the Cape that evening.

The chemo leaves me a little tired towards the end of the infusion, but no real side effects. Let's hope it stays that way. If you ever want to avoid naseau, I strongly suggest Zofran. That stuff is amazing.

Just a quick word about Jacqui. She's been a trooper. She and her six-and-a-half-month pregnant belly staying with me every night at the hospital (they bring in a chair that opens into a bed for her). I just can't imagine what my life would be like without her by my side. She's been through a lot in her life. She lost her mom at 9, and her Aunt (her mom's surviving sister) died just two months ago from lung cancer. And now this. But there's been no "woe is me" out of her. Not a complaint. Her only wish would be that the chemo permanently gets rid of my back hair (an unlikely scenario we've been told).

My situation is obviously different from her past. We'll get through this in one piece. And we are taking good care of each other. When I was diagnosed almost a year-and-a-half ago I said to myself that this whole lymphoma thing would, in its own twisted way, correct history: Jacqui would get to see her loved one get well, rather than sick, live rather than die. It is part of what has kept me so positive throughout all of this. Frankly, I have no choice.

Today's Chemo Side Effect

Freaky! Super freaky!