Just a quick note to let everyone who is still paying attention out there know (yea, you, in the green shirt in Wisconsin) that all is well here, that I had my 9 year check up in April, and that I got the all clear once again. Yay!!!
For the first time in many years, I was nervous (more like a bit panicked) in the weeks leading up to the visit. But all was perfect. And life goes on, as it has for more than nine years now.
I had my every-nine-month checkup this morning.
On the one hand, hard to believe that all of that happened. Lymphoma gets smaller and smaller in the rear view.
On the other hand, though the risk of relapse is smaller and smaller, in my quiet moments, there is still fear.
Some photos from lymphoma memory lane… Hard to believe.
Also, come walk with us at the Lymphoma Walk this Saturday…
And one of us all now.
Last Monday I visited Penn for my bi-annual check up. My usually M.O. is to delay the visit for a few weeks. Which I did. For almost two months. Which turned up the anxiety level for the visit. It needn’t had. I got the all clear from Schuster. My counts were robust–my platelets the highest they’d been in the almost 7 years since chemo finished weighing in at 183!!!
This visit turned into my seven year post-chemo visit because Schuster graduated me from an every six-month visit for a check up to an every nine-month visit. We’ll see if my anxiety level can withstand the new timeframe. I think it will.
But this is really great news and we couldn’t be happier.
As of my check up yesterday, it’s officially 6 years later of being in remission. It’s hard for me to believe sometimes, but almost 6 years ago (April 2007) I was discharged from HUP for the last time following an intensive 8 month regimen of chemotherapy for my then non-Hodgkin’s lymphoma. During those crazy days my father died and our first daughter Sophia was born (Sophia is now 6, and Charlotte is 3). And now I get to look back with both horror and joy at those times, and be grateful that I am here and healthy.
Just a quick note to let you know that I had my official 5-years-since-chemo visit (even though my official post-chemo anniversary isn’t until April 4–I won’t see the doctor again until August) and got the big thumbs up from Schuster. Everything normal. A durable remission, I am told. And this May will be 7-years-since-diagnosis. Finally, next week I celebrate my 11th birthday (in leap years). So all is good here.
On October 22nd, our family will walk in the Lymphoma Research Foundation’s annual 5K “Lymphomathon” to raise money for the organization that has been an important part of our lives over the last 6 years. It is amazing to think that this spring will bring the 5 year anniversary of my ongoing remission. Each year we talk and think about lymphoma a little less, but of course there is so much work that still needs to be done. Tens of thousands of people are diagnosed with lymphoma every year and many still die from the disease, including friends of ours.
I am writing to ask those of you who live in or near Philadelphia to consider joining our team, BaldMike, for the walk on October 22nd. Bust out your sneakers, double strollers, rocket-powered roller skates, whatever, and make your way to the beautiful Norristown Farm Park. We have had friends walk with us in years past and it makes the day even more special.
For more information please click the link below…
Greetings earthlings. It has been almost a year since I posted to the site and I’ve received a few emails from worried well-wishers making sure that I was ok.
Yes, I am doing great, thanks for asking.
Next week I will pass the 5-years-since-chemo-started milestone and I will be celebrating it in good health. I had a check up last month and got the big thumbs up.
Good health to all those out there in lymphoma-land!
I’ve gotten a few emails recently from blog readers asking if I was OK, given that I have not posted since the sleepless days of March when Charlotte was born.
The report from here is great. Charlotte is thriving, Sophia is doing great, and Jacq and I are starting to get some sleep (thank goodness!).